My cousin Tracy's friend is in surgery today, donating her Kidney to a stranger. Read the emotional blog...... It was suff like this I have been trying to find.
http://amaliborski.wordpress.com/
Wednesday, February 3, 2010
#6 My brother is joining the Paired Donation Network!!!!!!
As I mentioned before, my brother was allowed to be tested. To correct something I got wrong, apparently his High Blood Pressure incident wasn't a long time ago, it was not too long ago, but it wasn't a big issue so he was tested over the Holidays while in town. Yay!! He was the most likely candidate to match my mother, being directly blood related. Unfortunately, he was not a match. That news was hard to receive, and even harder to tell mom. But on the flip side, he has decided to proceed with entering into the Paired Donation Network!!! Currently the coordinators are looking for a hospital in the Dallas area that will handle his work-up.
Based on what the coordinator told me the last time I saw her, they should be taking all of the different cases that are in the big database and try to match them up next month. Hopefully my brother's workup will be done in time and he will be in that dataase as well.
Mom is doing quite well given the circumstances. She loves the new dialysis center, they treat her well, it is quite posh, and it seems to make her feel better. She seems to have more energy these days. She's been hitting the town and partying it up haha. Ok, she's gone over to a couple friends houses and had dinner. She's been battling severely low blood pressure. Some days its so low it doesn't even register. It is quite odd because not too long ago she was on medications for high blood pressure. But she is going about her daily routine. Because of her skin cancers (WEAR SUNSCREEN KIDS!!!) she is still having Mohs Surgeries quite frequently. Recently they took a rather large one out of her other leg, though it wasnt as bad as the previous surgery on the opposite leg. She quit using the crutch a couple days ago and is hobbling around the house. Did you know that Kidney Transplant patients are 4x more likely to have skin cancer. They have an increased risk for patients who undergo kidney transplantation and who receive long-term immuno-suppression. Mom had skin cancer before her transplant 24 years ago so it sent it into Hyperdrive. Read about it here.
Based on what the coordinator told me the last time I saw her, they should be taking all of the different cases that are in the big database and try to match them up next month. Hopefully my brother's workup will be done in time and he will be in that dataase as well.
Mom is doing quite well given the circumstances. She loves the new dialysis center, they treat her well, it is quite posh, and it seems to make her feel better. She seems to have more energy these days. She's been hitting the town and partying it up haha. Ok, she's gone over to a couple friends houses and had dinner. She's been battling severely low blood pressure. Some days its so low it doesn't even register. It is quite odd because not too long ago she was on medications for high blood pressure. But she is going about her daily routine. Because of her skin cancers (WEAR SUNSCREEN KIDS!!!) she is still having Mohs Surgeries quite frequently. Recently they took a rather large one out of her other leg, though it wasnt as bad as the previous surgery on the opposite leg. She quit using the crutch a couple days ago and is hobbling around the house. Did you know that Kidney Transplant patients are 4x more likely to have skin cancer. They have an increased risk for patients who undergo kidney transplantation and who receive long-term immuno-suppression. Mom had skin cancer before her transplant 24 years ago so it sent it into Hyperdrive. Read about it here.
Things have been uber stressful for my father recently. He's the one who has been taking care of mom on a day to day basis. I am sure this wares on him and must be hard emotionally. He's also been taking care of me the past 2 weeks, cause I had my tonsils out. Not a very nice proceedure to have an adult. I was unable to talk, eat, or function as a human being. Still not 100% yet, but i can talk now. Woohoo. I don't understand how mom can take pain killers, they have turned me into a zombie. I felt horrible not being able to care for my mom the past 2 weeks. And there still is a lot I can't do. I hate the fact that she has been worried about me. But this is a blog about her, not me so I won't get into details. But I was able to go over today and finish priming her bathroom for an hour. Thats how you know she is feeling better, she is wanting to redecorate the house!!!!
I wanted to thank all of those who have sent well wishes, inquired about donating, and got tested. If you were interested in being tested for my mom, but were not the right blood type, but still want to help, you too could join the Paired Donation Network. It is amazing option and is another way people can help who thought they weren't able to. If interested
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